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Brunn, R. D. and B. Bruun A Mind of Its Own Oxford University Press, 1994. Directed primarily at parents, it is extremely readable and well written, without sparing any technical details. Complete yet concise. The authors are physicians who have treated GTS patients for many years. Explains GTS to patients and their families in an informative, comprehensive, and accessible manner. Presents factual information on all important aspects of TS along with a composite case history. An excellent "first book." Audience: parents, patients, practioners. |
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Buehrens, Adam
Hi, I'm Adam A Child's Story of Tourette Syndrome Hope Press, 1990. This thin pamphlet is written by a 10 year old with Tourettes and is ideal reading for children with GTS as well as their siblings and classmates. Audience: children. |
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Chase, T. N., A. J. Friedhoff, and D. J. Cohen, (eds),"Tourette Syndrome," Advances in Neurology, Volume 58, Raven Press, 1992.
This volume presents an encyclopedic account of the past decade's achievements in the study and treatment of Tourette Syndrome and associated behavioral and psychiatric disorders. More than 90 of the foremost authorities from all relevant basic science, clinical, and behavioral science disciplines highlight the major recent developments worldwide - from groundbreaking genetic and neurochemical research and studies using state-of-the-art neuroimaging technologies, to new concepts on the clinical spectrum and natural history of TS, increasing recognition of comorbid conditions, and improved strategies for pharmacotherapy and psychosocial management. Audience: physicians and researchers. |
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Cohen, D. J., R. D. Bruun, J. F. Leckman, (eds), Tourette's Syndrome and Tic Disorders: Clinical Understanding and Treatment, John Wiley, 1988.
Tourette's Syndrome is now recognized as a common, lifelong condition and a ``model'' disorder reflecting the interaction of genetic vulnerability and environmental factors. Along with progress in research on Tourette's and other tic disorders, new approaches to treating this neuropsychiatric disturbance are now attracting wide interest among mental health workers. This book provides the broadest, most up-to-date account of this group of disorders, their features, symptoms, etiology and diagnosis, and various psychosocial disorders with similar symptoms. It also presents a variety of environmental and pharmacological therapeutic approaches that underscore areas of disagreement in the field, as well as new genetic, neurochemical and pharmacologic knowledge. Contributors to this work are all leading researchers or clinicians. Audience: physicians and researchers. |
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Commings, David E., Tourette syndrome and human behavior, Hope Press, 1990.
Extremely good but technical first reading on GTS. Written as a medical textbook, but provides all of the necessary background material for the general reader if he or she is sufficiently determined to tackle it. The author aimed this text at both patients and professionals. It is somewhat difficult for non-professionals to read but is not unapproachable, and does not go into quite the depth that a physician would expect. The book suffers from a number of typographical and printing errors but is well worth reading. Audience: patients, families, and physicians. |
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Commings, David E., Search for the Tourette Syndrome and Human Behavior Genes, Hope Press, 1996.
This is the story of the search, not a book about the genetics itself (although there is some of that). It provides a fascinating insight into the tribulations and politics of medical research. Audience: general audience. |
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Dornbush, Marilyn P. and Sheryl K. Pruitt, Teaching the Tiger A Handbook for Individuals Involved in the Education of Students with Attention Deficity Disorder, Tourette Syndrome or Obsessive-Compulsive Disorder, Hope Press, 1995.
An excellent practical reference for educators working with students who have Tourette Syndrome, Attention Deficit Disorder, and/or Obsessive-Compulsive Disorder. Descriptions of the disorders and explanations of associated symptoms are clear, well-written and jargon-free. The authors do an excellent job of explaining how these disorders affect emotions, thought processes, and overt behavior. Suggested educational techniques are practical, "everyday useful" kinds of interventions that are clearly and logically linked both to the situations in which their use is appropriate and to educational goals for the student. Audience: teachers, parents, counselors. |
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DSM-IV, Diagnostic and Statistical Manual of Mental Disorders, 4th edition, 1994, American Psychiatric Press
Know what your doctor is telling your insurance companies. This standard medical reference gives the "official" detailed descriptions of all psychiatric (psychological and nerological) disorders which may be diagnosed. |
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Farrell, Ryan C., God Made Me Special!!!! Tourette Syndrome, 1997, Children Writing For Children, POB 925, Westerville, OH 43086-6925, tel. 1-800-759-7171
I have not read this book, so I can't make any recommendations one way or another. |
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Friedhoff, A.J. and T. N. Chase, (eds)., "Giles de la Tourette Syndrome," Advances in Neurology, Volume 35, Raven Press, 1982.
Current state of knowldege and research (in 1982) on GTS, with contributions but leading researchers in the field. Audience: physicians and researchers. |
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Haerle, T., ed.Children with Tourette syndrome: A parent's guide, Woodbine House, 1992.
The author is a social worker who has two children, one with GTS. Includes a forward by Jim Eisenrich and chapters by numerous physicians, psychiatrists, social workers, and parents. For general reading. Well written, technically competent. Extensive list of resources. An excellent "first book." Chapters include: What is TS; Adjusting to your childs diagnosis; medical treatments and professionals; daily life with your child; children with TS and their families; your childs development; educational needs of children with TS; legal rights and remedies; living with TS: I am not my tics. Audience: parents, patients, family members, educators. |
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Hughes, S., RYAN: A Mother's Story of Her Hyperactive/Tourette Syndrome Child, Hope Press, 1990.
A true account of what can happen when your health care providers don't know very much about GTS. Audience: parents, general audience. |
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Hughes, S., What Makes Ryan Tick? A Family's Triumph over Tourette Syndrome and Attention Deficit Hyperactivity Disorder,Hope Press, 1996.
A mother's personal story of the family's encounter with GTS. Continues the tale about Ryan which began in "A Mother's Story." Audience: parents, general audience. |
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Jankovic, Joseph, "Tourette Syndrome," Special Issue of Neurologic Clinics, 15(2), May 1997, W. B. Saunders Company. The latest research in GTS presented by a selection of experts and researchers in the field. Audience: physicans and researchers. |
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Johnson Hamer, R.N., Sheryl, Raising Joshua- One Mother's Account of the Challenges of Parenting a Child with Tourette
Syndrome. Hope Press, 1997.
I have not read this book, so I can't make any recommendations one way or another. Audience: teachers, parents, counselors. |
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Kurlan, R., Handbook of Tourette's Syndrome and Related Tic and Behavioral Disorders, Marcel Dekker, 1993.
Provides a comprehensive discussion of tics and the associated behavioral disorders that often accompany chronic tic syndromes. The differential diagnosis and assessment of chronic tic disorders are discussed in detail, as are the state of the art neurobiology and the genetics and epidemiology, including the current work in progress that attempts to localize the gene for Tourette's syndrome. Other chapters discuss the clinical care of patients with tic disorders, including the pharmacological and nonpharmacological treatment and the approach to behavioral disorders of Tourette's syndrome. Special topics include future research into Tourette's and tic disorder syndromes, and the role of the Tourette Syndrome Association. Annotation copyright Book News, Inc. Portland, Or. Audience: Physicians and Researchers |
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Landau, Elaine tourette syndrome,Grolier, 1998.
A thin (the text is only 54 pages) but very well written description of GTS. Features include suggestions on how to cope and includes a number of anecdotal success stories. Reviewed by Booklist as accesible to grades 6 to 12. Footnotes lead readers only to secondary sources, such as newspaper, magazine articles, TV shows, and other books at the same level, which make this book one of the most approachable. The book also includes a 29 page list of organizations. Audience: General and Juvenile (grades 6 to 12) |
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Naseef, Robert , Special Childred, Challenged Parents - The Struggles of Raising a Child with a Disability Carol Publishing Group (1997).
Combines a father's account of his severely disabled son with a professional guide for parents of special needs children, a handbook, teaching parents how to understand the emotional turmoil and challenges that make parenting difficult and how to apply the principles of child guidance to their special situations. The author invites reders to share their stories and reactions by e-mail. I have not read this book, so I can't make any recommendations one way or another. Audience: parents |
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Robertson, Mary M and Baron-Cohen, Simon,Tourette Syndrome: The Facts, Oxford Medical Publications, 1998.
Excellent, concise treatment by one of the worlds leading experts on GTS. Audience: patients, families |
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Sedaris, David, Naked,Little, Brown, & Co., 1998. A collection of essays and short stories by this best-selling author, the story "A plague of tics" is one of the best descriptions of Tourettes/OCD that I have ever read. It is presented from an autobiographical perspective. Note: this is a work of fiction, but it is still good reading! Audience: general readers |
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PDR, Physician's Desk Reference, 52nd edition, Medical Ecomonomic Data, 1998. Revised annually. The golden standard for physicians; detailed description of virtually every prescription drug approved for use by the FDA, including possible side effects. Looking up prescriptions in this book before you use them could save your life. A pocket version which has the 1000 most common drugs (but it probably won't have the most recent GTS meds) is a lot cheaper but has not been revised since 1996. Audience: Physicians and serious students of GTS. |
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Seligman , Adam and John Hilkevich, editors; Forward by Oliver SacksDon't Think About Monkeys Extraordinary Stories Written by People with Tourette's Syndrome, Hope Press, 1992. I have not read this book, so I can't make any recommendations one way or another. Audience: general readers |
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Shimberg, Elaine Fantle, Living with Tourette Syndrome, Fireside Books (Simon & Schuster), 1995.
Written by a parent, this book covers all aspects GTS and should provide help for parents trying to find strategies to cope with it. Easy to read, well written, and very informative. Introduction by Arthur and Elaine Shapiro. Chapters include: Learning the symptoms; exposing the myths; understanding the cause and treatment; tracing the history; making the diagnosis; recognizing OCD, ADHD and other related problems; reacting to the diagnosis; dealing with the guilt; coping with the tics; managing behavioral problems; handling siblings's reactions; reducing stress; educating the educators; decoding governmental education guidelines; encouraging dating and social interaction; developing and maintaining a satisfying intimate relationship; determining and finding the right job; knowing your employment rights; interviewing; working with clients and coworkers; selecting your housing; celebrating success storys; camps for kids; support organizations. Audience: general readers, parents. |